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Save the Date: International Porphyria Patient Day on September 13th 2015 in Düsseldorf, Germany


Dear all,

We are happy to announce the next International Porphyria Patient Day will be during thePorphyrins and Porphyrias conference in Düsseldorf, Germany, to be held in 2015.

The conference will take place from September 14th to September 16th, and the Patient Day will be on Sunday, September 13th. We are working to organize the Patient Day with lots of interesting talks focussing on new emerging therapies, and will let you know details as soon as possible.

Thorsten (EPP Selbsthilfe e.V., Germany) 
[email protected]

The Alberta Porphyria Society is very pleased to announce the election of the Board of Directors for the Canadian Association for Porphyria/Association Canadienne de Porphyrie at the 1st Annual General Meeting on August 17th, 2014. The new national charitable organization will continue to provide support for Canadians with porphyria. 

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The Alberta Porphyria Society has partnered with four students from Community Service-Learning at the University of Alberta. They are working on updating bylaws and policies for the Canadian Association for Porphyria (CAP) which is applying to become - once again -  a national, charitable organization registered with the Canadian Revenue Agency. Aidan, Cherene, Jacob and Kristan are working on future revisions of the bylaws and policies for CAP. They bring extensive knowledge and energy to this process and we want to thank them for agreeing to work with us. 

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2014 Alberta Porphyria Society Memberships are Available

How to Become a Member of the Alberta Porphyria Society
Memberships Fees: $20/year/household

Please submit the membership form through this link.
 /become-a-member.html

Mail a cheque for the membership fee to:
Alberta Porphyria Society
13604 108 Avenue
Edmonton, Alberta
T5M 2C8

Please make cheques payable to: Alberta Porphyria Society


Thank you for your support!

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