Alberta (Canada) Porphyria Society
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Orphanet Prevalence of Rare Diseases 2013, Number 1


This report lists the estimated prevalence of five porphyrias as follows:

Acute intermittent porphyria: 0.54/100,000
Congenital erythropoietic porphyria: Less than 200 cases
Erythropoietic protoporphyria: .9/100,000
Hepatoerythropoietic porphyria: Less than 40 cases
Porphyria cutanea tarda: 4/100,000

http://www.orpha.net/orphacom/cahiers/docs/GB/Prevalence_of_rare_diseases_by_alphabetical_list.pdf
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