Alberta (Canada) Porphyria Society
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  • Past Events
    • 2014, March 26th - 1st Annual Hope Jam
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    • Porphyria Patient Education Workshop June 23, 2013
    • Rare Blood Disorders Education Day March 9, 2013
    • 2013 Annual General Meeting and Information Sharing
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  • 2015, 2nd Annual Hope Jam

Alberta Porphyria Society

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Members of the Alberta Porphyria Society (APS) January, 2012

For over twenty years Canadians received information, knowledge, understanding, and assistance from the Canadian Association for Porphyria. In 2010, the Canadian Association for Porphyria ceased to exist. In order to continue their work, a small group of supportive people met in Edmonton, Alberta, Canada to start a not-for-profit organization. We are following, slowly but surely, in the footsteps of Lois Aitken, former organizer and president of the Canadian Association for Porphyria.

The Alberta Porphyria Society (APS) held their first Annual General Meeting on the coldest day of the year, January 17th, 2012 in Edmonton, Alberta, Canada. The board and members brainstormed about ways to fulfill the organization's goals and set goals for the next year. Of course, stories about living with porphyria were shared by those around the table.

The Alberta Porphyria Society (APS) was voluntarily dissolved as of July 10,
 2015 as the board and resources were moved to the Canadian Association for Porphyria/Association Canadienne de Porphyrie.



The Alberta Porphyria Society (APS) was incorporated in Alberta, Canada on 2011/07/19.
Corporate Access Number: 5016195827
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