Alberta (Canada) Porphyria Society
  • Home
  • What's New
  • Information about Porphyria
    • Guide to Porphyria
    • Types of Porphyria
    • Drug Safety Databases
    • EPP
    • Laboratory Investigation of the Porphyrias
    • Canada - Reported Cases of Porphyria
    • Prevalence
  • About Us
    • Alberta Porphyria Society
    • Support for Canadians with Porphyria
    • Network of Rare Blood Disorder Organizations
  • Support
    • Peer to Peer Support
    • International Porphyria Organizations
    • Rare Connect
  • Research
    • Research in the USA and Canada
    • Research - International
  • Resources
    • Orphanet
    • Mobile Web App for the Safe/Unsafe Drug List for the Acute Porphyrias
    • Patient's and Doctor's Guide to Medication in Acute Porphyria
    • Medicalert Canada
    • 2013 International Porphyria Conference
  • How To Help
    • Become A Member
    • Donate
    • Volunteer
  • Past Events
    • 2014, March 26th - 1st Annual Hope Jam
    • 2014 Annual General Meeting
    • Porphyria Patient Education Workshop June 23, 2013
    • Rare Blood Disorders Education Day March 9, 2013
    • 2013 Annual General Meeting and Information Sharing
  • Our Sponsors
  • Our Partners
  • 2015, 2nd Annual Hope Jam
Picture
Rare diseases are rare, but 
rare disease patients are 
numerous
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