Thanks to the Network of Rare Blood Disorder Organizations - Alberta for sponsoring this event.
Thank you to those who attended.
Network of Rare Blood Disorder Organizations (NRBDO) – Alberta presents…
Rare Blood Disorders Education Day
Saturday, March 9, 2013
8:00am – 4:30pm
University of Alberta,
Edmonton, Alberta
We were very pleased to have a presentation by Dr. Brian Gilfix of McGill University, Montreal, Quebec. Dr. Gilfix had served on the Advisory Board of the Canadian Association for Porphyria. You can read his article, Lab Investigation of the Porphyrias on this website.
We were also very fortunate to have four people with porphyria share their experiences. Thank you!
This was a rare opportunity to bring together Canadians with porphyria, their family members, medical professionals and researchers.
Announcement:
We are pleased to announce an amazing collaborative event organized by the Network of Rare Blood Disorder Organizations
(NRBDO) – Alberta chapter:
Rare Blood Disorders Education Day
March 9, 2013
8:00am – 4:30pm
Edmonton, AB
Change of Location:
Edmonton Clinic Health Academy
University of Alberta
11405 87 Avenue NW
Edmonton, Alberta T6G 1C9
L1-190 - Lecture Theater - Lower Level
There will be sessions dealing with topics that appeal to patients, family members, caregivers and the general public. In the afternoon each group will host a session for people who areinterested in learning more about a particular disease.
Cost: The entire event is FREE thanks to our sponsors and includes a continental breakfast, lunch and refreshments.
Registration: Pre-registration is required. You can register using our on-line registration form at: http://goo.gl/ck5T1
Support Groups Involved: Representatives from the following seven groups, along with physicians from the Divisions of Hematology in Edmonton and Calgary, have been pooling their knowledge, effort and resources in order to plan a day that will educate, inspire and motivate you:
Thalassemia Foundation of Canada - Southern AB Support Group thalassemia.ca
Thrombotic Thrombocytopenic Purpura Foundation answeringttp.org
Sickle Cell Foundation of Alberta sicklecellfoundationofalberta.org
Canadian Immunodeficiencies Patient Organization cipo.ca
Aplastic Anemia and Myelodysplasia Association of Canada (Aplastic Anemia, Myelodysplasia (MDS), Paroxysmal Nocturnal Hemoglobinuria (PNH)) aamac.ca
HAE Canada (Hereditary Angioedema) haecanada.org
Alberta Porphyria Society albertaporphyriasociety.weebly.com
Travel Subsidy: There are a limited number of travel subsidies (to a maximum of $500) available. If you require a subsidy, please indicate this on the registration form.
Hotels: If you will need hotel accommodation, the list below is within a reasonable distance from meeting site:
1. Varscona Hotel on Whyte - 780-434-6111
8208 - 106 Street (From 105/night)
2. Delta Edmonton South Hotel - 780-434-6415
4404 Gateway Blvd (from $149/night)
3. Best Western Cedar Park Inn - 780-434-7411
5116 Gateway Boulevard (from 88/night)
4. Campus Tower Suite Hotel - 780-439-6060
11145 - 87 Ave (from 200/night)
The rates listed are for information purposes only. The NRBDO - Alberta does not guarantee these rates.
This is a rare opportunity to meet and interact with physicians and health care providers that work with blood disorders on a day-to-day basis. It is also a time for you to learn more and to network with others who are directly affected.
For more information:
Contact nrbdo.alberta@gmail.com or visit any of the above websites.
We look forward to seeing you on March 9th!
Sincerely,
The NRBDO-Alberta Organizing Committee:
Dr. Bruce Ritchie, University of Alberta
Dr. Karen Valentine, University of Calgary
Michelle Patterson-Nipp, Sickle Cell Foundation of Alberta
Aba Yorke, Sickle Cell Foundation of Alberta
Wendy Sauve, Alberta Porphyria Society
Silvia Marchesin, Aplastic Anemia and Myelodysplasia Association of Canada
Libby Tough, Canadian Immunodeficiencies Patient Organization
Paulette Vinette, HAE Canada
Salim Amlani, Thalassemia Foundation of Canada
Mina Rajan, Answering TTP
We are pleased to announce an amazing collaborative event organized by the Network of Rare Blood Disorder Organizations
(NRBDO) – Alberta chapter:
Rare Blood Disorders Education Day
March 9, 2013
8:00am – 4:30pm
Edmonton, AB
Change of Location:
Edmonton Clinic Health Academy
University of Alberta
11405 87 Avenue NW
Edmonton, Alberta T6G 1C9
L1-190 - Lecture Theater - Lower Level
There will be sessions dealing with topics that appeal to patients, family members, caregivers and the general public. In the afternoon each group will host a session for people who areinterested in learning more about a particular disease.
Cost: The entire event is FREE thanks to our sponsors and includes a continental breakfast, lunch and refreshments.
Registration: Pre-registration is required. You can register using our on-line registration form at: http://goo.gl/ck5T1
Support Groups Involved: Representatives from the following seven groups, along with physicians from the Divisions of Hematology in Edmonton and Calgary, have been pooling their knowledge, effort and resources in order to plan a day that will educate, inspire and motivate you:
Thalassemia Foundation of Canada - Southern AB Support Group thalassemia.ca
Thrombotic Thrombocytopenic Purpura Foundation answeringttp.org
Sickle Cell Foundation of Alberta sicklecellfoundationofalberta.org
Canadian Immunodeficiencies Patient Organization cipo.ca
Aplastic Anemia and Myelodysplasia Association of Canada (Aplastic Anemia, Myelodysplasia (MDS), Paroxysmal Nocturnal Hemoglobinuria (PNH)) aamac.ca
HAE Canada (Hereditary Angioedema) haecanada.org
Alberta Porphyria Society albertaporphyriasociety.weebly.com
Travel Subsidy: There are a limited number of travel subsidies (to a maximum of $500) available. If you require a subsidy, please indicate this on the registration form.
Hotels: If you will need hotel accommodation, the list below is within a reasonable distance from meeting site:
1. Varscona Hotel on Whyte - 780-434-6111
8208 - 106 Street (From 105/night)
2. Delta Edmonton South Hotel - 780-434-6415
4404 Gateway Blvd (from $149/night)
3. Best Western Cedar Park Inn - 780-434-7411
5116 Gateway Boulevard (from 88/night)
4. Campus Tower Suite Hotel - 780-439-6060
11145 - 87 Ave (from 200/night)
The rates listed are for information purposes only. The NRBDO - Alberta does not guarantee these rates.
This is a rare opportunity to meet and interact with physicians and health care providers that work with blood disorders on a day-to-day basis. It is also a time for you to learn more and to network with others who are directly affected.
For more information:
Contact nrbdo.alberta@gmail.com or visit any of the above websites.
We look forward to seeing you on March 9th!
Sincerely,
The NRBDO-Alberta Organizing Committee:
Dr. Bruce Ritchie, University of Alberta
Dr. Karen Valentine, University of Calgary
Michelle Patterson-Nipp, Sickle Cell Foundation of Alberta
Aba Yorke, Sickle Cell Foundation of Alberta
Wendy Sauve, Alberta Porphyria Society
Silvia Marchesin, Aplastic Anemia and Myelodysplasia Association of Canada
Libby Tough, Canadian Immunodeficiencies Patient Organization
Paulette Vinette, HAE Canada
Salim Amlani, Thalassemia Foundation of Canada
Mina Rajan, Answering TTP
